http://www.netvouz.com/Xyzzy/tag/arnold_chiari?feed=rss Xyzzy's bookmarks tagged "arnold_chiari" on Netvouz http://carolynschiari.blogspot.com/ "Life with a chronic illness - Chiari malformation - POTS - Occult tethered cord - Ehlers Danlos Syndrome - Cranio-cervical instability - Functional Cranial settling - Retroflexed odontoid - Dealing with chronic pain - Headache without end!" Health & Disability Xyzzy Sat, 08 Jan 2011 08:12:45 GMT http://chiarione.org/ "Our Mission: Help individuals who may have CM1; Help doctors learn more about the most recent advances in diagnosis; Provide official, respectable documentation of previously diagnosed and treated cases." Health & Disability Xyzzy Sat, 08 Jan 2011 07:26:14 GMT http://www.pressenter.com/~chip/chiari.htm Excellent site about Arnold Chiari Malformation 1, with a huge number of personal stories about what people experienced leading up to diagnosis & what helped them improve. Health & Disability Xyzzy Fri, 29 Oct 2010 04:24:58 GMT http://www.conquerchiari.org/index.htm "Dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research." Health & Disability Xyzzy Sat, 08 Jan 2011 07:20:13 GMT http://www.conquerchiari.org/subs%20only/Volume%202/Issue%202(5)/Wide%20Range%20Symptoms%202(5).asp Interesting page on a study published in 2004 about the wide range of problems ACM can cause, as well as their prevalence. Health & Disability Xyzzy Mon, 16 Nov 2009 01:00:46 GMT http://lifelibertycoffee.blogspot.com/ "I have a brain fart that the medical community calls Chiari Malformation. After decompression surgery in 2006, my brain is learning to coexist peacefully with my spinal cord in the cramped quarters of my spinal canal. With a real hole in my head, I am now free to continue the pursuit of life, liberty, and good coffee -- between headaches, nausea, dizziness, and seizures, of course!" Health & Disability Xyzzy Sat, 08 Jan 2011 08:02:52 GMT http://overflowingbrain.com/ "I'm Katie, a 27 year old, full-time graduate student who just happened to have brain surgery in November of 2007 to give my ginormous brain a little more space. This blog chronicles my daily life, from relentless headaches to being a doctor's wife." Health & Disability Xyzzy Sat, 08 Jan 2011 07:59:15 GMT http://www.squidoo.com/chiarimalformation Great explanation of what ACM1 is, common symptoms, what it's like to live with it, and so forth. Health & Disability Xyzzy Sat, 08 Jan 2011 08:04:58 GMT