http://www.netvouz.com/Xyzzy/tag/medical?feed=rss Xyzzy's bookmarks tagged "medical" on Netvouz http://www.webwhispers.org/library/PegTube.asp Great overview on how they're placed, what they are, different methods, and personal experiences living with them. Xyzzy Fri, 08 Apr 2011 10:10:40 GMT http://stillmilestogo.com/2011/03/23/no-longer-starving-4/#more-684 Adults/kids that use feeding tubes (and a few parents) on what they'd like people to know about feeding tubes and the folks that have them. Definite must-read for stereotype/stigma bashing! Xyzzy Fri, 08 Apr 2011 10:42:48 GMT http://stillmilestogo.com/2011/03/19/no-longer-starving-3/ Information about the different classes of tubes & how they help, using pics of the tube-wearing stigma-bashing author's young friends to illustrate. Xyzzy Fri, 08 Apr 2011 10:37:37 GMT http://www.makoa.org/vent/ventlife.htm "Here's rich evidence that life doesn't end after mechanical ventilation from the people who know best -- readers who use vents. They put to rest the vexatious quality-of-life issue, and prove that a vent is just a machine, not an enemy." Xyzzy Fri, 08 Apr 2011 11:02:39 GMT http://www.thechildrenshospital.org/wellness/info/parents/77902.aspx#Article Article about what hospice is, the kinds of services it has to help kids & their family (including things you might not expect), when/where it's offered, and so forth. Xyzzy Fri, 08 Apr 2011 09:55:46 GMT http://chiarione.org/ "Our Mission: Help individuals who may have CM1; Help doctors learn more about the most recent advances in diagnosis; Provide official, respectable documentation of previously diagnosed and treated cases." Health & Disability Xyzzy Sat, 08 Jan 2011 07:26:14 GMT http://www.pressenter.com/~chip/chiari.htm Excellent site about Arnold Chiari Malformation 1, with a huge number of personal stories about what people experienced leading up to diagnosis & what helped them improve. Health & Disability Xyzzy Fri, 29 Oct 2010 04:24:58 GMT http://www.conquerchiari.org/index.htm "Dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research." Health & Disability Xyzzy Sat, 08 Jan 2011 07:20:13 GMT http://aspitude.blogspot.com/2010/01/world-autism-interviews-amanda.html Amanda Baggs on Access to Quality Healthcare in an Autistic World Health & Disability Xyzzy Wed, 23 Jun 2010 09:28:57 GMT http://members.verizon.net/~vze2r6qt/supplies/compare.htm#Table4 Gives the price at recommended online stores for 12 IV admin sets, 1 box of needles, the shipping/handling, total if you buy both together, and what brands they sell. Misc. Xyzzy Sat, 06 Mar 2010 10:45:46 GMT